The Silicon Valley Ideal Of Autism Vs Reality
by David Banner. Reprinted.
In modern times, with respect to ASD or Asperger's, a fairly recent social movement based on neurological diversity has created a certain public profile for autistic people. The Autistic Community has claimed certain success in promoting autism as a neurological type of personality, and not an illness. We hear that, in California, there's a whole community of ASD high-tech workers, all gainfully employed at Silicon Valley. The worrying development here, however, is the fact Asperger Syndrome (now ASD) has over time been given a "gloss over". People who genuinely suffer from severe limitations imposed by autism conditions are all constrained to live up to certain stereotypical ideals. Should an individual act in any way as to somehow tarnish the post 1990s image of the "personality type concept", it's not been unknown for community forums to "undiagnose" the individual. One case that springs to mind is that of Gary Mckinnon whose obsessive interest in SETI set him on a collision course with the government. Calls for a former, professional diagnosis to be over-ruled rang loud and clear.
To get to the point: It now seems a divide is gradually starting to take shape. Many people who battle with autism are starting to feel that apathy towards their condition as a psychiatric disorder is worsening perspectives for therapy. These people and their families seek expert therapy and support and essentially distrust the Autism Social Movement.
Personally I do not see all autistic conditions as an "illness" (more a deviation) and I remain convinced Hans Asperger in no way viewed his patients as inferior. Asperger was well aware neurological diversity existed.
So, is there a problem here? Well, yes!
As I see it, the whole concept of the Silicon Valley dream is highly flawed. First and foremost, it assumes all people who are diagnosed with autism spectrum, by default are supposed to be I.T. geeks. More troublesome too is the fact that all society needs to do to demonstrate tolerance and inclusion is simply request corporations to advertise I.T. employment positions to people on the autism spectrum. This likewise assumes those who aren't neurotypical will conveniently drop their own particular, obsessive interests and hastily swat up on I.T. Personally, I have known people with ASD who very seriously devote their time to geology or ancient languages. One was unemployed and the other made money by gardening or child-minding for friends. Neither one was an I.T. geek.
The biggest misconception, however, is summarised by Hans Asperger's clear distinction between "autistic personality traits" and full-blown "Autistic Avoidant Psychopathy" This distinction has been misunderstood in modern psychology. While a far more significant percentage of the population might show pronounced autistic characteristics, my own view is that Asperger's original conception of his diagnosis is much less common. Whereas many of the relatives of his patients were described as "odd and socially awkward", they were, nevertheless, employable or married, with some connection to the real world. The same could not be said for the actual patients. All of these displayed motor impairment, delays in emotional intelligence, inability to work to a schedule and resistance to organised, group activity. They were disconnected from the world around them.
According to in-depth research by Dr.Judith Miller and Dr. Sally Ozonoff, none of Asperger"s original case patients would have been covered by the modern DSM. In modern times, this would have left them undiagnosed.
This leads to the final paradox. Autistic people do not blend into communities. Being autistic means that the patient tends to avoid group identity. Autistic people think differently so individuality and remoteness are part of the autistic mindset. Therefore, in any socially organized group or society, the most popular representatives will always be made up by those who have higher levels of social intelligence. Sadly, this latter is rated far above the logical, analytical intelligence, which some autistic people possess. Therefore, it would be a huge mistake to assume autistic people themselves would rise in the ranks of groups, social media forums or societies. More to the point, many autistic individuals feel unable to adequately express themselves even in written format. The instability caused by their condition may have limited their perspective. In all my years studying ASD, one thing became abundantly clear: 99 per cent of the information published about ASD has little actual imput from those affected by the condition. A great deal of research relied upon observation of children who would have lacked maturity to allow for more in-depth analysis. Thus, analysis was based on observation and inferred conclusion although elite researchers such as Asperger took great pains to communicate with patients.
What then is the solution? I believe what's needed today is solid, scientific research and availability of information. Also far better diagnostic support should be planned with less over-complication of reliable research, which was passed down to our generation by brilliant researchers such as Asperger and Suhareva, Van Krevelin abd V Kagan. Personally, I find the Silicon Valley dream somewhat patronizing as it relies on stereotypes and inadvertently trivialises the realities most patients face.