can anyone help?

Postby stephcatstar » Sat Nov 09, 2019 11:00 pm

I am the mother and carer of a 19-year-old (almost 20-year-old) Child with Autism. The last couple of months last year he went thought what to him was hell. We had strangers in and out of our home doing the roof and putting in a new boiler, my ex's dad and mom (who my son was close with) both passed away and then the main thing that seemed to upset him the most he lost his PlayStation account.

It is the last one hs is obsessed with. He thought of it as his job, he never made any money playing the game he did on it but to him, it was his job and when PlayStation permanently banned his account it crushed him. It took me a month to persuade him to make a new account to talk to his friends he had on there and to play games on, I even put money on it so he could rebuy all his games, but he refused to buy the main game he was playing back then as he wanted his old account (or his job as he called it) back.

Cut to January this year. He suddenly stopped bathing, stopped changing his clothing and stopped brushing his hair (which is long as he said he wanted long hair). I called social services, they said they didn't know which side needed to come out to him (Mental health or adult learning) so they would look into it and get in touch with me. Months went past and still, my son would not bath or change or even talk to me about anything. He stopped going out places with me as well saying he didn't want to go places with me. Eventually, I called the doctors as I was so worried about how not bathing was going to affect my son's health. They said they would call him in for a check-up and that would allow me to bring the subject up with the doctor with him there.

I did just that and my son gave me a black look and refused to talk, so I left the room so he would open up. I have no idea what was said because of the whole patient-doctor confidentiality thing, but she said she was sending him to see the NHS mental health. By this time July was here and my son was starting to stink but still, he refused to bathe or change. We went through to see the mental health lot and he went into their office alone and I stayed in the waiting room. Once more I wasn't told anything but when he came out he seemed a little more like his old self including being willing to go shopping in Asda with me while we were there. At the same time, I had rung social services again and they said they would send someone out in 3 weeks, which I told my son. They didn't show up so according to my son I lied to him. Also in July, I managed to finally find a care company that was willing to come out to do a befriending like service for him, they were the only ones in my area that would do it like no one else did this area. So I hired them to come out once a week just for 30 minutes to try and get him to open up to them.

About a month later a group called MAIN started to come out, I had no idea who sent them as once more they said they couldn't tell me anything without my son's permission. At this point, I rang the mental health people he had gone to see to see when they would be seeing him again as it had been over a month since he had last seen him. They said they had signed off on him and passed him to MAIN. So after hanging upon them, I rang social services again. They apologized for not being out yet and said because of his autism he needed to see their mental health side, not the adult learning side. I said I didn't care which side came out as long as a social worker came out as that is what my son has been shouting for since January. They sent 2 mental health nurses out and they upset him to the point he told them un-politely to go away. MAIN, however, was still coming out all be it only half an hour a month and he was still talking to them, although the poor carer who came out was still talking to a closed bedroom door for 30 minutes each week.

We are now in November I have called social services another twice since the last time and at the beginning of the month the social services mental health nurses came out again and once more they annoyed my son to the point he told them once more un-politely where to go. However a few days ago they rang me and told me to keep an eye on my son in a few days time as he has said he will hurt himself if he doesn't get his job back by then (His PlayStation account), he had added that they weren't to tell me.

So now I am stuck. I have called them again asking for a social worker for my son and got told one of the mental health nurses had been a social worker, but they never said that when they came out. They seem to have washed their hands of my son. MAIN is still going to be coming out but after ringing them and telling them I was concerned and what I think would help my son I was told they can't discuss anything with me without his permission. He still hasn't bathed and his boxer shorts are more like scrap material than boxers. If ANYONE on here can suggest what I can do to try and get my son bathing again and changing his clothing, or which organizations I could turn to to get him help, I would be very grateful as all of this worry and stress is causing my depression to begin spiraling, normally I have control of my problems but at the moment I don't, however I know if I could find him the help to get him back to where he was with is bathing and changing clothing and going out and about with me or anyone else then I would be able to get control of my own depression once more
stephcatstar
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#1

Postby Icanbeatthis » Sun Nov 10, 2019 12:58 am

Hi, I would like to try and help. I will break it down to understand it all. You absolutely need more information the more the better. Identifying the problem is simple he won't be clean. The first thing I would ask is for u to find out if he can't bathe or he wants to not bathe. Can't or won't are very different.
Identifying the cause is the way to start. It branches out from there. 1 if he can't bathe is there some kind of fear of something? U can only try and ask him maybe u could try a reward if he won't say.
2 is he possibly choosing to not bathe to hurt you? Does he blame you?
3 I feel fantastic after a shower and clean clothes is he choosing to punish himself?
4 if still no answers u could keep trying ways to motivate him to bathe asking him of course, demanding it, rewarding it, describing how good he will feel after, I would be careful with this but maybe a punishment? If he's doing it to hurt u u could ask someone else to try to motivate him. That's all I've got I don't him well enough. Gather as information as you can is my advice I hope it helps
Icanbeatthis
 

#2

Postby Icanbeatthis » Sun Nov 10, 2019 1:15 am

The only 2 pieces of info I have from u is he lost his PlayStation account and won't bathe. Its not much to go on but I can have guess. He lost the most enjoyable thing in his life now he's sad and can't b bothered with life. So the cause of it all is a loss of enjoyment the solution is to bring enjoyment back into his life. Make him some extra delicious meals, make his room look nice, buy him a gift, smile at him and tell him u love him, any little thing you can to return pleasure to his life. It can't hurt!
And it's something you can do right now to help him
Icanbeatthis
 

#3

Postby Icanbeatthis » Sun Nov 10, 2019 1:33 am

I would start with 1 nice thing, next day 2 nice things, day 3 3 nice things. Once you form a pattern of his life being more enjoyable it will take a life of its own. I'll shut up now
Icanbeatthis
 

#4

Postby stephcatstar » Sun Nov 10, 2019 10:04 am

Thank you Icanbeatthis. I hadn't thought of it as being a kind of punishment which really I guess that is what it is. I have tried talking to him and I get told where to go only not so politely. I have tried offering rewards if he would. I even promised to buy him a VR set this Christmas if he would begin bathing again and changing his clothes and all I got told was "Nice try no". He won't let me in his room so doing anything for him in there is out of the question. That is a mixed blessing though not being allowed in as his room smells as bad as he does. I have tried throughout the year to buy him Paladins for his new account (As playing that game was what he saw as his job) and I get told no and to un-politely go away. I can hear him now talking online to one of his friends about how evil I am because he lost his account due to a misspelling and I won't let him get it back despite me desperately trying to get it back for him. I am at a total loss what to do the authorities don't seem to want to help they just dumped the "Hey he is threatening to hurt himself a year to the day of losing his account if he doesn't get it back thought we should tell you so you can keep your eyes open bye" then left.
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#5

Postby Icanbeatthis » Sun Nov 10, 2019 10:35 am

It sounds clear to me he is punishing you, that's just what you needed relevant information. Now you have the direction of the problem you at least have a chance to remedy it. You had zero chance of fixing it when you didnt know what the problem was! And not knowing is the worst, this is a great step for your depression. That's something very worthwhile.
OK the next thing will take all your strength and courage wait until your strong enough. Ask him why he is angry and blaming you punishing you. He will tell you I'm reasonably sure because he wants to lash out and hurt u. Be strong and brave its certainly not true. U will gain the knowledge that you need to proceed from here Its all I've got without more information. Its got to be better than waiting for a phone call. Not knowing is the worst, waiting for an unknown phone call for some kind of unknown treatment is also the worst. You must be doing it very tough be proud your keeping it together in such hard times
Icanbeatthis
 

#6

Postby Icanbeatthis » Sun Nov 10, 2019 11:14 am

If you do ask him y he's punishing you or blaming you and he lashes out it won't be true u don't want to get upset disagree or argue just listen. Walk away calm down have cuppa then process what he said
Icanbeatthis
 

#7

Postby Icanbeatthis » Sun Nov 10, 2019 11:25 am

You can't react to or reward his hostility if u can't act calm walk away but casually he is hostile for a purpose. You don't want to give his hostility any power
Icanbeatthis
 

#8

Postby stephcatstar » Sun Nov 10, 2019 12:21 pm

The one thing I can guarantee he is the one person I never get angry at. I have asked him why he feels like I am to blame and I get told to un-politely go away. I have asked him why he seems to hate me and got told to go away, I have asked him what can I do to make things better for him and help him and again got told to shut up and go away.
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#9

Postby Icanbeatthis » Sun Nov 10, 2019 12:33 pm

That's great you tried. I wonder why he won't say or how he can be convinced to say. I will need to think about that 1. If he won't say maybe he will say why he won't say? (unlikely and you have probably tried allready) but worth a try if u havn't. Its not much, I will keep thinking
Icanbeatthis
 

#10

Postby stephcatstar » Sun Nov 10, 2019 12:42 pm

I would give you a link to one of his youtube videos that... puts things from his point of view but I don't wish to make the link public.
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#11

Postby Icanbeatthis » Sun Nov 10, 2019 12:52 pm

Sure I would be interested and no way I would make it public
Icanbeatthis
 

#12

Postby Icanbeatthis » Sun Nov 10, 2019 1:08 pm

I have 1 idea. His blaming u is an emotional decision he has no intellectual reason is why he is not saying. U can try to out him for instance 'I care for you and I know your blaming me it's not my fault and u know its not my fault how can we fix this?) from there it all depends if it works. Where do I find this link if u have sent it yet please?
Icanbeatthis
 

#13

Postby stephcatstar » Sun Nov 10, 2019 1:14 pm

I have asked him what can I do to help and get told to go away.
Last edited by stephcatstar on Sun Nov 10, 2019 1:24 pm, edited 1 time in total.
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#14

Postby Icanbeatthis » Sun Nov 10, 2019 1:18 pm

I can't see a link am I mistaken? I think we may be able to send private messages too
Icanbeatthis
 


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